A Perfect Storm

Sometimes, when your kid has a bad day you can go back and analyze it and figure out all the places things went wrong that cause the problem.

Well, yesterday we experienced a perfect storm, Jason-style.

Because Micah is sick and Hannah is recovering, I made arrangements for Jason to walk home with the daughters of our friends. Jason has walked with them in the past on occasion and while it isn't the best situation, it works most of the time. In fact, we walked friday of last week without a single problem.

Although yesterday the fourth grade celebrated Ohio's birthday by eating lots and lots of Ohio made food. All of it contained processed sugars and chemicals. Stuff we don't feed Jason. Stuff his brain reacts, um, poorly too. In my defense, I misread the sheet and thought the party was Friday. Still, it was not a good thing for Jason.

Add to the food, changing Jason's routine. Although he is a normally flexible enough guy to handle this, routine changes do increase his anxiety.

And then, as they walked away from the school, someone hit him with a snowball. A kid who has been unkind to Jason in the past. A kid Jason who bullies him.

Jason yelled in anger and went after the kid. His friend tried to stop him by grabbing his coat, thus causing Jason to feel like he was choking. This was bad. Unbeknownst to the girl, this is a HUGE PTSD trigger for Jason. What followed was not pretty.

For the remainder of the 25 minute walk home, Jason yelled, pushed, tackled and threw snow at every kid he felt was bullying him or had in the past. The boys also yelled, pushed, tackled and threw snow at him. It appears that while Jason was the first to make thing physical, the other boys certainly played their part. It was not a good thing.

Also, remember how I talked about Jason's Autism and his inability to read situations or respond to them. Jason was yelling things that didn't even make sense, things he had heard on TV, making it funnier for the kids going after him.

When Jason did get home, I could tell something was up, but it took quite a while to decode it and get to the bottom of everything. His PTSD reaction means he only has vague images and recollections of what occurred after the coat was pulled. Of course, we were upset because he knows not to fight like that. But once we pieced everything together, we began to see things in a bit differently. In fact, it was this morning when clarity set in, that I realized while my son's response was wrong, the situation with the school has reached ridiculous proportions.

So, I started making phone calls and writing emails. I became Super Activist Mom and spent the majority of the day with a phone on my ear and a keyboard under my fingers.

I heard back from the school we are considering to learn that Jason made it to the final phase of the selection process and we should have a decision after they complete some testing and meet with the committee.

I spoke with two more Autism specific programs in town and have appointments made to tour their schools and meet with the administration.

I requested a revision on his ETR to qualify him under Autism instead of OHI so we can access more services.

I am asking that transportation be added to his IEP because he cannot travel to and from school safely like his peers.

There is a lot still pending and a lot of decisions to be made in the coming month, but at least now we have a plan.

A Brief Education on My Son's Autism

Autism Spectrum Disorder encompasses a wide range of disorders and diagnoses, each with varying severity, including Autistic disorder ("classic" autism), Aspergers Syndrome, and Pervasive Development Disorder, Not Otherwise Specified, or PDD-NOS. This means that you can have kids who are both extremely severe or really mild with the same diagnosis. Jason's actual diagnosis is Pervasive Development Disorder, Not Otherwise Specified. What does that mean? Let me tell you.

In Jason's case, he has a complete disconnect socially. While he wants friends, he can't read facial expression or tone. Sarcasm is completely lost on him and he cannot distinguish the nuances of relationships or conversation. He may jump into a conversation at an inappropriate point, say something completely unrelated or take a joke too far. He's also quite literal with what he hears so when you say to him angrily, "I dare you to do that again!" he will. He fidgits and touches things and doesn't always have the best personal space awareness.

Because of all of this, he doesn't relate well with his peers or older kids. At this point, kids younger by a few years seem to be okay with him. I think they have more social tolerance at this age and as they are still learning the social rules themselves and are just less into talking and more into playing. Jason's peers aren't so understanding. Because he looks normal, they expect him to act normal. And if they have known him more than a year or two, they are even less understanding because he used to be normal. He wasn't. He just wasn't abnormal enough to be diagnosed.

Jason's reaching an age where kids have a greater understanding of their place in society and how they want to be perceived and so far, most don't want to be perceived at being his friend. This hurts Jason a lot. A common misconception is that Autistic kids can't feel emotions, but the truth is that they feel them quite deeply. He doesn't understand why the kid who played catch with him at baseball practice ignores him and laughs at him at school. He doesn't get why he's told he can't sit down with a kid at lunch. And he really doesn't understand why no one wants to play with him even in his own neighborhood.

Differences like these make it very easy for Jason, and others like him, to be picked on or bullied by people who are uninformed or uneducated about Autism or similar disorders. The fact that he doesn't always know or understand when he's being picked on often will make him a perpetual target.

So, here is my request. I know there are a few people who read this who have kids who know Jason from school or church. And if you don't, but know someone who does, please feel free to forward this on. I don't want people to force their kids to be his friend. I would simply like that if you have a child who knows my son that you take a moment to educate them a little on these differences to make Jason's next contact with them a positive one. I think that most kids just don't know what to make of him and without meaning to, hurt his feelings. I'm praying that a little bit of education can go a long way.

Thank you.

Educational Insanity

Last night I had a meeting at the school to write a new IEP and discuss the results of the latest testing.  We also spent a great deal of time brain storming how to deal with the bullying situations.  The staff at the school really likes him and find him a joy to work with.  Overall, I am happy with the results, but still have some questions.

Because at the time we started testing, Autism was not in question, they did not do any educational autism assessments.  Now, they do believe he is on the spectrum and have written a portion of his IEP to deal with pragmatic language and social skills.  In fact, this social group that he is now a part of actually meets in the specialized Autism classroom once a week.  However, because they didn't do their assessment, they couldn't take his doctor's letter at face value and qualify him under Autism for his IEP.  My concern is that he will need this qualification to get the Autism Scholarship to cover the new school if he gets in, but the school psychologist says that is not the case.  That I just need to call the district office and they will help me through the steps in getting the scholarship.  Still, I'm going to be making some phone calls today to confirm this.

In addition to being stressed and in a meeting most of yesterday evening, this morning I am taking Jason over to visit the new school.  We are still very hopeful that this will work out, but don't know anything yet. They mentioned concerns about his language scores and the "underlying cause" of his LD.  We're still hopeful though and appreciate any and all prayers as we work towards this.

What's up with Jason?

I haven't said much about Jason and the start of the 4th grade since last month. Not because nothing is happening, but because so much is.

4th grade became too much to handle exactly 3 days in. He let me know this by taking a pair of scissors to his jeans and cutting a gash in them and his leg. Praise GOD this was the same day as a therapist appointment. Mrs. Donna was meeting Jason for the first time that afternoon. Talk about jumping into the deep end. Thankfully, we had already met and she just dove right in. We left with a better understanding of why he did this as well as some strategies to avoid it. Oh, and he no longer gets to keep scissors in his desk at school.

This incident prompted me to call for an IEP review, which, thankfully, our school scheduled within a week. Jason is now getting direct instruction at maximum levels for all the core subjects and his homeroom teacher is modifying his tests and in class work to be very oral and low key for him. You just can't expect a kid with all his issues to handle following a lecture and take notes. By the time he would finish writing some thing down, his teacher was 3 points ahead of him. Now he's provided with the notes preprinted for him to read along with and highlight as well as illustrations on the topic. They are also doing his evaluation now instead of in the spring when it is due. Jason can't spend anymore time outside of class than he is and we may be looking at part-time in a self-contained classroom.

Oh, and to top it all, at Jason's psychiatrist appointment last week, he was diagnosed as having Autism Spectrum Disorder. At this point, he is diagnosed with the classification of PDD-NOS, but they are considering Asperger's as well.

All in all, it's been a lot to take in. I'll keep updating as I get the chance.