Jordan was born with Jarcho-Levin Syndrome, a very rare genetic disorder that lead to his death. His arrival put Jason's birth family on social services map. Because of his complex care, social workers would start to regularly visit the house. Before Jordan was 2, an investigation was launched and it lead to the removal of all the children from the home. Jason was born a couple months after this and came into foster care then.
Jason's file said very little about Jordan. It simply noted his name, how his case tied to Jason's and how he had passed away. Jason's foster mother remembers him fondly. She told us he was a sweet joyful boy who loved life. He is smiling in nearly every picture we have of him. Jason knows him through pictures and stories we have relayed to him.
I don't know if I can properly explain what Jordan means to Jason. We spoke a lot today over the brother he never knew and the one he did but doesn't see. About the family he lives with and the one he can't. I can only imagine how hard it is to be so young and to have lost so much.
And although today involved a visit to the grave of one of those losses, the tears that flowed were surely for so much more.
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